Category Archives: Dave’s Journey

January 19 was our last oncology appointment. Over the last few weeks Dave has continued to lose function, energy and strength. Moving is hard, standing is harder and walking is almost impossible without physical assistance. Talking has become more difficult, more so around word finding and expressing himself. Yes/No questions are the rule, but weContinue reading “Expected but hard news”

Christmas 2020 was very different from previous Christmas’s. COVID-19 restrictions required that we not get together in groups, not inside or outside. Dave’s continued health decline created it’s own challenges in moving both inside and outside of the house. Good thing that we were able to move back into the upstairs kitchen, which seemed toContinue reading “Christmas with family”

Deterioration of abilities creates rage, frustration and anger. Adaptation is hard when you haven’t had to adapt to body changes much in your life. I think this impacts men much differently from women, especially women who have had children, but then I have never completely lost the use of a limb. Over the last 3Continue reading “Rage, frustration and sadness”

There has been a lot of anxiety around our house over the last 6 weeks. The children went back to school – virtually – which means mom is both teacher, coach and all of my other duties. The whole start of the HUB Online School was a mess which created a lot of anxiety. WeContinue reading “Anxiety Overload”

July started off pretty rocky with the news that Dave’s tumor was growing. It hit us pretty hard as we have been fairly optimistic and positive through this journey so far, and that was a big blow to our optimism, but as always we pulled together and kept looking forward with hope. New chemotherapy, let’sContinue reading “Summer Stability”

The last few days have been exceptionally hard for us. Confronting your own mortality at 40 isn’t something that we are prepared to do. Usually you are confronting the mortality of Grandparents, or maybe parents, but not usually your own. Now I have to prepare you that no one is dying immediately, but with theContinue reading “And we thought 2019 was bad…2020 can just (insert your own expletive)”

April showers are supposed to bring May flowers…yet we are still sequestered inside and away from others. Though we did see a really nice long weekend. However, there doesn’t seem to be a middle ground that is being found throughout all of this. It’s hard to share what we are going through as it isContinue reading “Birthdays, Mothers Day and Sleeping People”

Good news arrived in early April related to Dave’s treatment and recovery. Even though the bad news was that we were all staying home, away from people and not allowing anyone into our house. Which I have to say, wasn’t really a big stretch, other than the children roaming around and usually appearing in myContinue reading “Physical/Social Distancing in April”

I don’t even know where to begin for March. The journey with Dave is ongoing and CHALLENGING. March brought a whole new level to the game, and we call this level COVID-19. FIRST OFF – WE DID NOT GET IT!!!! We have been fortunate to have gone into seclusion just before the rapid onset ofContinue reading “March was a mess”